1. When you received Darcy’s diagnosis, did you ever feel as if you were being punished for something you had done?
The question of whether I had done something that would cause God to punish me in this way did cross my mind. Jason and I both wondered this. But I know, as evidenced by how God used this special child, that he was not using her to punish me. Of course, the Bible says that God does discipline, or train, His children to put them back on the right course, but that’s not the same as punishment. If the blessings that came with Darcy are punishment, I don’t know what punishment is.
2. Were you ever angry with God?
I’ve been asked that question a lot. In fact, many have advised me that it’s all right for me to be angry, even at God.
I’ve always considered myself a weak person. Before Darcy, I was confident that God would never give me more than I could handle (1 Corinthians 10:13). I rested on that verse and just “knew” that losing a child was something that would never happen to me. But it did happen to me, and here I am walking in the aftermath. But, no, I never became angry at God. I was angry at a lot of people, but not at God. It wasn’t because I was some super Christian with nothing but pure intentions. It was simply that I’ve never embraced that concept. God was and is the source of all the good things in my life. He has given me a wonderful husband and beautiful children. We have never been in need of anything. How could I be angry at Him because something didn‘t go my way, despite how grave it was? Get mad at him? God forbid! Are we not supposed to love God in the valleys as well as on the mountaintops? Doesn’t He bring rain on the righteous and on the unrighteous?
His ways are not our ways. So many beautiful things have come from Darcy’s life and death. Even though Darcy never said a word, her story helped stop abortions. Her life has caused many parents to love their children a little more, to worship God a little more, and in some cases, even to come back to Him. Darcy had more impact on people in her fifteen days with us than I have ever had in my lifetime. Her legacy will live on.
Was I ever angry at God? No. Who am I to question my Creator?
3. How did you hold on to your faith in God through the trials?
I don’t know how I got through. It would be easy to say that I wish I had slept through the entire thing and then woke up when it was over. But that’s not how I feel. My time with Darcy was the single most difficult series of days in my life. But I would not have gotten to know my little angel were it not for those days. I once heard that it is a beautiful experience that I would wish on no one. Been there, done that, and it’s so true.
I know one thing for sure: The Lord is the author and finisher of my faith (Hebrews 12:2). I had faith not because I had it in me to have faith. I had faith because He gave me just enough faith to go through this.
4. What more did you learn about your faith through your journey with Darcy?
I believe that the things I learned about my faith are only some of the blessings I mentioned above. The biggest lesson is that God will never leave us in our time of need. Another is that it relates to the second half of 1 Corinthians 10:13: that God will make a way for me to endure the testings, or trials, in my life. We should never underestimate the power of God or second-guess Him. He loves us and wants only the best for us. And even though we don’t understand how trials can be good for us, we must trust in God’s sovereignty. We need to have faith through the trials, and when we reach the other end, we can look back and see that He has been carrying us through them all.
A famous poem by Mary Stevenson, called “Footprints in the Sand,” expresses my sentiments more beautifully than I can.
One night I dreamed I was walking along the beach with the Lord.
Many scenes from my life flashed across the sky.
In each scene, I noticed footprints in the sand.
Sometimes there were two sets of footprints,
Other times there were one set of footprints.
This bothered me because I noticed that during the low periods of my life,
when I was suffering from anguish, sorrow, or defeat,
I could see only one set of footprints.
So I said to the Lord,
“You promised me, Lord, that if I followed you,
You would walk with me always.
But I have noticed that during the most trying periods of my life
there have been only one set of footprints in the sand.
Why when I needed you most, have you not been there for me?”
The Lord replied,
“The times when you have seen only one set of footprints in the sand,
Is when I carried you.”
5. How did you find the daily strength to go on, knowing that your baby would probably not survive long after her birth?
In the beginning, my focus was on finding a cure or anything that could save her. Eventually, my focus turned to wanting to make the most of the time God would allow me to have with her. He gave me the strength and inspiration I needed to focus, not on Darcy’s dying, but on her living.
I wanted to make sure I had no regrets after she was gone, so I made a list that was based on advice I solicited from many people who had already walked this road before me. I made sure that we did as many of the items on the list as God would allow, so that Darcy’s life—however long it might be—would have meaning for me and for everyone else who knew her. We had to make a lifetime of memories in a very short time. We didn’t know how long Darcy would live, but we went through that list as if she were going to die before the next minute came. I believe that gave me the energy and drive that helped me bear what could otherwise have been a horrific two weeks. Jason made it his goal to see to it that every item on the list was accomplished. I believe it was his shining moment.
6. What did you and Jason need to do—in your relationship—in order to persevere through the pregnancy and then after Darcy was born?
Studies have revealed that there is a high rate of divorce for parents of deceased children. We were aware of that and vowed not be a statistic. Our relationship has been tested more through the pregnancy and Darcy’s life than at any other time in our twenty years of marriage. We still struggle, but we are persevering. I believe that our relationship will eventually become unbreakable because we have a righteous multitude who continue to pray for us and provide love and support. We used to think of ourselves as independent people who do not need to rely on others for help. We were determined to meet this challenge head-on. But during that time, God revealed the pride that was the source of our independent attitude, even toward each other. He showed us in practical ways by gathering His people around us in our time of need. I guess this is where the phrases “for better or for worse, in sickness and in health” from our wedding vows come in.
7. In what ways has your experience with Darcy changed the person you are now?
God has made me much more compassionate toward those who experience similar trials, especially those who have kids with any kind of trisomy condition. Also, because I survived this heart-wrenching ordeal, I know that I can survive anything and can help others do the same. Last, I have a renewed commitment to help spread a new kind of “pro-choice” message: that we must choose to help those who cannot help themselves, especially our own unborn children.
And, of course, the negative thing about the experience is that there will always be a Darcy-shaped hole in my heart, a hole that will never be filled in this life.
8. How has your experience changed your family and your life together?
It has brought us closer, and we value one another more. We now truly believe that life is a vapor and that any one of us can suddenly be taken up to heaven. Although the kids occasionally forget this and fight, the fights don’t last as long as they used to.
This is part of the silver lining in such a hard experience. Grief has a strange but powerful way of forcing us to confront the sins in our lives. And even though we have to go through more rough roads while we’re grieving, we also know that it’s the best way to deal with those sins in a lasting way.
9. What advice would you give to families going through this kind of experience—whether or not they know God?
Of course, I am not a psychologist. But because I have gone through it, I feel I have something to say about the matter. But I would give advice only if I were asked for it. The hurt of losing a child is so deep that the last thing people want is unsolicited advice. The reality is, I would much rather have my child here with me, alive and well. However, if someone asked, these are things I might tell them.
First, I would tell them that they will need to prepare for a long, hard road ahead. During the delivery, a nurse told Jason that we were about the face the deepest sorrow in our lives. She was right. In a way, this helped us brace ourselves and expect the worst. Knowing it was coming helped us deal with it better than we would have if we have not known what to expect. And, the proof is in the pudding. God does see you through, and joy does come in the morning.
Second, I would urge them to rely on one another and never forsake one another, just as God has never forsaken us. The death of a child can do irreparable damage to a marriage. Satan uses situations such as this one to split families. Husband and wives must work extra hard to keep it together both during and long after the death of their child. Do not lay guilt on the other person or blame him or her for the disease. Instead, be understanding with one another. Each person has a different way of dealing with the grief and stress. Realize that everyone in the family—not just the mother—is grieving. The grieving period will pass, but you need give family members as much time as they need.
Following that, I would encourage them to trust that the Creator has their little one in His care and that their precious child will soon be in His arms. If they want to see their child again someday, they must believe in God’s Son, Jesus. My advice would not change just because someone else doesn’t believe the way I do. I know that God’s Word always bears fruit, so I would rely on the Holy Spirit to direct what I say and to reveal His message to the hearts of those I speak with.
During Darcy’s time with us, we realized that her story is more than a message about life on earth. It is, in a more important way, a story of eternal life with our Creator. Jason called Darcy our “little evangelist.” I think we’ll see the truth of that statement once the book is released. The story of Darcy is a story of God’s grace, mercy, and loving-kindness. It was when we were in the deepest despair that we really got to know God. Our hope is that when people share our sorrow as they read about Darcy, they will come face-to-face with the Savior.
Having said all that, I would like to offer two pieces of unsolicited advice to those who desire to comfort grieving families: First, it is better to offer nonverbal support, such as giving hugs or simply sitting quietly and listening. A sweet lady at our church did that for me. Whenever she saw me, she just leaned over and gave me a long hug without saying a word. I will never forget those hugs. Second, and this is in line with the first statement, do not feel compelled to say something and end up being insensitive (for example, “at least you have other children”).
10. What were some of the supportive things that friends and family did or said that were most helpful in dealing with the pregnancy and adjusting to life after Darcy was born?
We came together and supported one another. There was no bickering or whining. The focal point was Darcy. It was the one thing we shared. We assured one another that her condition was not a result of anything we did. We said, “I love you” a lot.
Where do I begin? Every day for several weeks, we enjoyed meals that church friends had lovingly created. Our deacon family coordinated activities during Darcy’s birth. During the delivery, several women were there to coach me. Those who had medical backgrounds were available to us 24–7. Those who knew photography took literally hundreds of pictures of Darcy and the family. Church families spent the night to help us care for Darcy. Our pastors and deacon constantly checked on us and made sure we were in need of nothing. They brought a church service to our home (one of the items on Darcy’s List was to go to church.) The list is endless, but the experience would not have been the same without the support of our church family. Our little church became a picture of how the body of Christ should act.
Friends (neighbors, doctors and nurses, and other acquaintances) were very understanding. Knowing that hundreds of these people were available to us at a drop of a hat was so reassuring.
The comments posted on Darcy’s Web site from people all over the world were a source of inspiration to us. Finding out about lives saved, families reunited, and people finding their way back to God gave us a clear sense that Darcy’s life had purpose. We took comfort and strength in those numbers: Approximately four thousand people a day followed Darcy’s story!
Prayer kept us connected to God. That connection stayed strong, due in large part to the thousands of petitions people brought to the only One who could help.
It may be difficult to open the Bible in times of such intense pain, but there is so much comfort to be had in knowing what the Lord has to say about times like these. The verses I have stated above have been my inspiration.
I played several specific songs constantly during our time with Darcy. Now when I hear those songs every now and then, my thoughts return to the sweet moments I had with my little girl in my arms, her smell, her softness, her purity.
You may find out more about this book at http://www.darcyanne.com/index.html.